OUR STORY
ACA Consumer Advocacy was the natural outgrowth of a consumer support group formed following the abrupt closure of Land of Lincoln Health, the Illinois Co-Op plan developed under the ACA. Land of Lincoln closed abruptly, with no prior warning. The night the news came out about the closure, several people went online to their Facebook page to see if there was any information there. Unfortunately, there was not. What was there were several people looking for answers.
After a couple of days, three voices rose to the forefront and began chatting among each other. These three women decided a support group was needed to get as many people together to share information, concerns, issues, and news together, and the Illinois LOLH Consumer Support Group was formed. One of these women, Jeannine Martin, who started the group, reached out to the Illinois Department of Insurance to get answers. She was granted a meeting and asked the two other co-founders to join her, Emily Burchfield and Miranda Wilgus. Together, they represented small business owners, mental health providers, and people with preexisting conditions, and went armed with questions and concerns from consumers in the group.
Following that meeting, the support group became a conduit to provide accurate information about the subsequent special enrollment period, referring escalated situations, and providing information on how to submit claims against the estate of Land of Lincoln Health. During this time, Barbara Gerend joined the administrators of the group.
As the special enrollment period came to an end, the four women met and determined that they could not stop. There was a definite need of the consumer's voice in advocating needed fixes to the ACA. So, ACA Consumer Advocacy was born in the early fall of 2016 with the intention of advocating for the improvement of the ACA.
Following the election of 2016, the mandate of the group shifted to the defense and protection of the ACA, with the eventual goal of improving it and working to create an affordable, equitable, comprehensive form of health care for all Americans.
The first real action of ACA Consumer Advocacy was a meeting to bring elected officials face to face with ACA consumers before they went back to Washington, DC in January of 2017, to a new administration that had run on the repeal of the ACA. It was determined that to make the most difference, there needed to be dialogue and partnership between consumers and both state and federal lawmakers, since the ACA is a law that works at both the state and federal levels.
During this time, we met Tracy Trovatto, an ACA advocate who had her family's experience with the benefits of the ACA highlighted by the Chicago Tribune. Contacts among other ACA advocates, both in real life and online, continued.
Today we are members of the Protect Our Care IL coalition and the Illinois Coalition for Healthcare Access. We have also partnered with the ACA Signup Project for the 2018, and now 2019, open enrollment period to help offset the drastic reduction in budget by the administration for enrollment outreach, education, and navigator assistance.
After a couple of days, three voices rose to the forefront and began chatting among each other. These three women decided a support group was needed to get as many people together to share information, concerns, issues, and news together, and the Illinois LOLH Consumer Support Group was formed. One of these women, Jeannine Martin, who started the group, reached out to the Illinois Department of Insurance to get answers. She was granted a meeting and asked the two other co-founders to join her, Emily Burchfield and Miranda Wilgus. Together, they represented small business owners, mental health providers, and people with preexisting conditions, and went armed with questions and concerns from consumers in the group.
Following that meeting, the support group became a conduit to provide accurate information about the subsequent special enrollment period, referring escalated situations, and providing information on how to submit claims against the estate of Land of Lincoln Health. During this time, Barbara Gerend joined the administrators of the group.
As the special enrollment period came to an end, the four women met and determined that they could not stop. There was a definite need of the consumer's voice in advocating needed fixes to the ACA. So, ACA Consumer Advocacy was born in the early fall of 2016 with the intention of advocating for the improvement of the ACA.
Following the election of 2016, the mandate of the group shifted to the defense and protection of the ACA, with the eventual goal of improving it and working to create an affordable, equitable, comprehensive form of health care for all Americans.
The first real action of ACA Consumer Advocacy was a meeting to bring elected officials face to face with ACA consumers before they went back to Washington, DC in January of 2017, to a new administration that had run on the repeal of the ACA. It was determined that to make the most difference, there needed to be dialogue and partnership between consumers and both state and federal lawmakers, since the ACA is a law that works at both the state and federal levels.
During this time, we met Tracy Trovatto, an ACA advocate who had her family's experience with the benefits of the ACA highlighted by the Chicago Tribune. Contacts among other ACA advocates, both in real life and online, continued.
Today we are members of the Protect Our Care IL coalition and the Illinois Coalition for Healthcare Access. We have also partnered with the ACA Signup Project for the 2018, and now 2019, open enrollment period to help offset the drastic reduction in budget by the administration for enrollment outreach, education, and navigator assistance.
Staff
Tracy Trovato:
Miranda Wilgus
Board
(in formation)
Steve Anderson: Steve Anderson is editor and content manager for healthinsurance.org, where he works with a talented team of health policy writers. Anderson is a writer and editor with two decades of communications experience that includes previous lives in print journalism, corporate communications, and public affairs.
Phyllis Boateng: Currently working as an intake coordinator for an HMO in Milwaukee under BadgerCare, Phyllis Boateng has several years’ experience in benefits administration, including over 8 years at Hewitt Associates in a corporate benefits center. In addition, she has had experience enrolling on the ACA exchange in Illinois and later BadgerCare in Wisconsin. Phyllis brings unique understanding of healthcare from several perspectives, both in practical application and from personal experience.
Charles Gaba: In 2013, when neither the government nor the mainstream media provided consistent, reliable reporting of enrollment data for the Affordable Care Act, Charles Gaba launched ACASignups.net as a hobby, using crowdsourcing to track enrollments in real time. His work soon caught the attention of major media outlets, and has been cited and used as a resource ever since by media outlets spanning the ideological spectrum including the Washington Post, Forbes, Bloomberg News, Vox.com, MSNBC, The New Republic, USA Today, the CATO Institute, National Review Online and The New York Times among others, as well as prominent medical journals such as the New England Journal of Medicine and The Lancet. Since launching this project, he has expanded his analysis to include the impact of the ACA's Medicaid Expansion, SHOP exchange, BHP provision and a variety of other Obamacare-related programs.
Graciela Guzman: Board President. Graciela Guzman is the Coalition Manager for Protect Our Care Illinois (POCIL). In this role as Coalition Manager, Graciela’s primary focus is defending and building upon the expansion of health coverage through the Affordable Care Act (ACA) and Medicaid through leadership and support to POCIL’s diverse statewide coalition. Graciela is deeply committed to a fair and just health care system and has helped lead campaigns educate and enroll hard to reach Illinoisans in health insurance coverage through Medicaid, Health Insurance Marketplace, and Medicare. Graciela’s passion for healthcare is derived from her experiences with her family and within the trenches of healthcare, helping the community access services.
Jeannine Martin: Treasurer. Co-founder and board member. Based on her professional experience working in Benefits Administration for the employers, her current work in benefits administration services, as well as personal experience purchasing insurance via the Marketplace, Eva Jennine Martin brings a different perspective to the board. She is educated in all the nuances of purchasing and use of medical insurance. She personally believes that educating all consumers, whether on employer sponsored insurance or individual plans, and advocating for the consumer, is essential. Her professional experiences, personal experiences as a former small business owner, and individual consumer for health insurance make her a strong addition to this board.
Wylie Rogers: Secretary. For over 50 years I have been an active participant in the struggle for civil and economic equality and social justice. For me in practical terms this means an unrelenting and uncompromising fight for basic human needs and against all forms of oppression and exploitation. I am a social worker by profession (MSW,PHD) with decades of experience in child welfare and community mental health. I enjoy research, writing music, and teaching. My greatest accomplishment is my 50 year marriage to my life partner Leah.
Inna Rubin: A healthcare advocate, Inna has been working on ACA as a navigator since Open Enrollment 1. She worked for United Way of Chicago, focusing on ACA enrollment and health care access. In the summer of 2016, she helped co-found and became the chair of the Illinois Coalition for Health Access.
Mina Schultz: Mina is currently an outreach specialist at GetCoveredNYC, a New York City initiative to connect New Yorkers with health coverage. She was formerly a certified application counselor in rural West Virginia for three Open Enrollment periods. Mina has a Master’s in French and foreign language teaching from the University of Missouri, and is currently a Master of Public Health candidate at the George Washington University. As a cancer survivor, Mina believes protections for those with pre-existing conditions are essential, and has extensive experience advocating for access to quality, affordable, comprehensive health care.
Jen Waldman: Jen Waldman is the current Director of Action for a Better Tomorrow Northern Suburbs, which began as an offshoot of Pantsuit Nation, following PSN’s decision to become a 501c3 organization. Jen has been instrumental in organizing the Northern Suburban group, meeting with elected officials, and setting up educational forums on a wide variety of issues important to the community, including health care. She coordinated a successful series of meet the candidate events for several IL gubernatorial candidates before the state primary. She brings organizing skills and contacts to the board along with her passion to work for the public good.
Steve Anderson: Steve Anderson is editor and content manager for healthinsurance.org, where he works with a talented team of health policy writers. Anderson is a writer and editor with two decades of communications experience that includes previous lives in print journalism, corporate communications, and public affairs.
Phyllis Boateng: Currently working as an intake coordinator for an HMO in Milwaukee under BadgerCare, Phyllis Boateng has several years’ experience in benefits administration, including over 8 years at Hewitt Associates in a corporate benefits center. In addition, she has had experience enrolling on the ACA exchange in Illinois and later BadgerCare in Wisconsin. Phyllis brings unique understanding of healthcare from several perspectives, both in practical application and from personal experience.
Charles Gaba: In 2013, when neither the government nor the mainstream media provided consistent, reliable reporting of enrollment data for the Affordable Care Act, Charles Gaba launched ACASignups.net as a hobby, using crowdsourcing to track enrollments in real time. His work soon caught the attention of major media outlets, and has been cited and used as a resource ever since by media outlets spanning the ideological spectrum including the Washington Post, Forbes, Bloomberg News, Vox.com, MSNBC, The New Republic, USA Today, the CATO Institute, National Review Online and The New York Times among others, as well as prominent medical journals such as the New England Journal of Medicine and The Lancet. Since launching this project, he has expanded his analysis to include the impact of the ACA's Medicaid Expansion, SHOP exchange, BHP provision and a variety of other Obamacare-related programs.
Graciela Guzman: Board President. Graciela Guzman is the Coalition Manager for Protect Our Care Illinois (POCIL). In this role as Coalition Manager, Graciela’s primary focus is defending and building upon the expansion of health coverage through the Affordable Care Act (ACA) and Medicaid through leadership and support to POCIL’s diverse statewide coalition. Graciela is deeply committed to a fair and just health care system and has helped lead campaigns educate and enroll hard to reach Illinoisans in health insurance coverage through Medicaid, Health Insurance Marketplace, and Medicare. Graciela’s passion for healthcare is derived from her experiences with her family and within the trenches of healthcare, helping the community access services.
Jeannine Martin: Treasurer. Co-founder and board member. Based on her professional experience working in Benefits Administration for the employers, her current work in benefits administration services, as well as personal experience purchasing insurance via the Marketplace, Eva Jennine Martin brings a different perspective to the board. She is educated in all the nuances of purchasing and use of medical insurance. She personally believes that educating all consumers, whether on employer sponsored insurance or individual plans, and advocating for the consumer, is essential. Her professional experiences, personal experiences as a former small business owner, and individual consumer for health insurance make her a strong addition to this board.
Wylie Rogers: Secretary. For over 50 years I have been an active participant in the struggle for civil and economic equality and social justice. For me in practical terms this means an unrelenting and uncompromising fight for basic human needs and against all forms of oppression and exploitation. I am a social worker by profession (MSW,PHD) with decades of experience in child welfare and community mental health. I enjoy research, writing music, and teaching. My greatest accomplishment is my 50 year marriage to my life partner Leah.
Inna Rubin: A healthcare advocate, Inna has been working on ACA as a navigator since Open Enrollment 1. She worked for United Way of Chicago, focusing on ACA enrollment and health care access. In the summer of 2016, she helped co-found and became the chair of the Illinois Coalition for Health Access.
Mina Schultz: Mina is currently an outreach specialist at GetCoveredNYC, a New York City initiative to connect New Yorkers with health coverage. She was formerly a certified application counselor in rural West Virginia for three Open Enrollment periods. Mina has a Master’s in French and foreign language teaching from the University of Missouri, and is currently a Master of Public Health candidate at the George Washington University. As a cancer survivor, Mina believes protections for those with pre-existing conditions are essential, and has extensive experience advocating for access to quality, affordable, comprehensive health care.
Jen Waldman: Jen Waldman is the current Director of Action for a Better Tomorrow Northern Suburbs, which began as an offshoot of Pantsuit Nation, following PSN’s decision to become a 501c3 organization. Jen has been instrumental in organizing the Northern Suburban group, meeting with elected officials, and setting up educational forums on a wide variety of issues important to the community, including health care. She coordinated a successful series of meet the candidate events for several IL gubernatorial candidates before the state primary. She brings organizing skills and contacts to the board along with her passion to work for the public good.
Advisory Council
(in formation)
Barbara Otto
Laura Packard
Leah Rogers
Barbara Otto
Laura Packard
Leah Rogers